Sorry that you are here, but glad that you found us. We have all been where you are, newly diagnosed and really wondering what is ahead. How unfortunate that your urologist was so inexperienced in dealing with patients!!
One thing that you will see on this list over and over is to GET A SECOND OPINION FROM A REALLY QUALIFIED UROLOGIST WHO DEALS WITH LOTS OF BLADDER CANCER.
I am unfamiliar with anyone's expertise at CCA, but being in Phoenix you have access to one of the very best experts in bladder cancer treatment in the country, Dr. Donald Lamm.
www.bcgoncology.com/drlamm/
If at all possible, I would recommend a consult with him. Bladder cancer is very different from most other cancers; the first line of treatment is NOT with oncologists and other "cancer experts" but with those urologists who see LOTS of bladder cancer cases. Not all do, as the $$$ are there in treating prostates!
As you may have found in your reading, one of the problems with bladder cancer is that it has to tendency to recurr...it must be caught early (as yours has) and then be constantly monitered.
Best of luck to you, and remember that we are here to answer your questions. Been there, done that!
Sara Anne