Update from Warren

12 years 1 month ago #40927 by upnorth
Replied by upnorth on topic Update from Warren
I would wait until after you get the info. from your pathology.

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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12 years 1 month ago #40926 by mmc
Replied by mmc on topic Update from Warren
I'd suggest after. Then you will also have the pathology report and slides from this TURB as well.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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12 years 1 month ago #40925 by warrentug
Replied by warrentug on topic Update from Warren
Thanks for the information on the vaseline, that explains about this morning :) I thought I already had an infection but now I realize that was just the lube they had used that came out during the night.

Don't get me wrong, I took a ton of pain meds when I woke up at the doctors office, and last night. But by today all I needed to take was the spasm meds....when the spasms are going it does hurt but it's just for a few seconds.

I think I have decided on John Hopkins for my second opinion, but do I do it now before my next doctors appointment or do I wait until after? What's the normal procedure?

O.k. thanks again for all the help, Warren

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12 years 1 month ago #40923 by upnorth
Replied by upnorth on topic Update from Warren
Warren,

Glad to hear everything has gone well so far. No pain meds? You are one tough <strong>GUY</strong>! Use real Vasaline jelly on the entry point, otherwise the lube could dry up and leave you with the tiny daggers of death.

I found sleeping in my chair worked best for me untill the cather came out. Man I was happy to get that out of me. I healed up realy fast after that.

Best of luck on the patholagy, I'm sure it will be good. You suffered enough with the cath.

Mark

Age 55
Diagnosed BC 12/20/2011 Ta No Mo 0a Non-Invasive At age 48
"Please don't cry because it is over..... Smile because it happened!" {Dr. Seuss} :)

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12 years 1 month ago #40922 by dukel
Replied by dukel on topic Update from Warren
Warren, it's good to hear from you. OH, how i hated those catheters. I'm glad your doing okay with it. It's good to know you are moving forward and not waiting. Like Catherine said, I hope you get good news back.
Duke

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12 years 1 month ago #40921 by mmc
Replied by mmc on topic Update from Warren
Warren,

Be sure to use that lube stuff on the catheter hose where it enters the body (you know where I mean). Grow-age and shrinkage happens spontaneously at nite and lack of lubrication can be a real pain.

Glad it went well. As Catherine said, Johns Hopkins is pretty popular for 2nd opinions. I think they even have a way to sign up for it online.
Other options are MD Anderson, and Memorial Sloan Kettering.

I hope all comes back clear on the pathology!


Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

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