Hello... I am glad you found our forum but am so sorry you are in such pain. I hope your doctor/uro will see you immediately. If you have to in the meantime, go to an ER. It sounds like your TURB was quite extensive and very irritating to your bladder. Also kidney stones can be extremely painful and cause similar symptoms.
After you get this immediate problem with the bleeding and pain resolved, a second opinion from a major hospital/center for bladder cancer is highly recommended if you have not already done so.
Where are you located? We may be able to recommend a facility and/or doctor. I do hope you find some relief very soon.
Best wishes... Catherine
Forum Moderator Team
TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
This is from someone new to the site I am posting this for her until we get a pre post flight check done. I have emailed her to tell her to call her doctor!
Hi! I have never posted in a forum before and can't figure out how, but I am at my wits end, and hope you can help. A little over a year ago I was diagnosed with bladder cancer. Every 3 months since, I have had a cystoscopy and my urologist cauterized the growing number of occurances...first 3 then 4 then 5. Last Thursday I have surgery to remove ones he couldn't reach and had mitomycin pushed into bladder. Since then, I have had increasing bleading, and painful urination to the point of bringin me to tears. I handle alot usually (had 4 kids with no pain meds), but this has really got me. They sent me home with vicodin and a pill that turns the urine orange, but nothing seems to be helping, and the pain is getting worse. Please help is you can. Thank you
T2 g3 CIS 8/04
Chemotherapy & Radiation 10/04-12/04
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society