Newbie

12 years 6 months ago #39437 by mmc
Replied by mmc on topic Newbie
Ron,

T3b is NOT something to mess around with or to wait with.
Try to get in where Pat suggested. You need the best and you need them NOW!!!!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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12 years 6 months ago #39435 by Nix
Replied by Nix on topic Newbie
I agreed with you, Pat. That is why I clarified with my dx'd and suggested other places, if it is at all possible for RonFors to go to another hospital. If he can't leave the state, becuse of insurance, Orlando or Miami are an option.

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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12 years 6 months ago #39431 by Patricia
Replied by Patricia on topic Newbie
Nix..i don't have a problem with Moffitt with non-invasive but for invasive 3b i'd get the best i could find and quickly. I don't know if you were around when Maria was here and Moffitt kept putting her off.........she didn't make it.
pat

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12 years 6 months ago #39423 by Nix
Replied by Nix on topic Newbie
I go to Moffitt and my doctor is Dr. Sexton. I am very pleased with my care. However, everyone is different and every diagnoses is different. Mine started out as Ta and year later CIS - treated successfully (so far) with BCG.
If you are looking for another TURB or opinion, there are some very experienced and highly recommended surgeons up north. You might want to check on MD Anderson in Orlando, and there is a great doctor in Miami (I think Patrica has the name)
As Patricia always says " get the best doctor you can afford!"
This is your life, and nothing is more valuable!
Good luck, I'll keep you in my prayers and thoughts!
Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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12 years 6 months ago #39419 by dieseldoc
Replied by dieseldoc on topic Newbie
My opinion is that if a doctors office puts my appointment out that far they are either way over worked and over booked and can't really give you there full attention, or they think that it is realy no big deal. Either way it is no good for you. I would take Pats advice and go to U of Miami.




Gary

T1,NO,MO battling bladder cancer since 2005

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12 years 6 months ago #39416 by Patricia
Replied by Patricia on topic Newbie
Moffitt does not have that many bladder cancer surgeons and the wait is always long to get in there. And i don't think they are the best. Can you go out of state or are you willing to travel within the state? U of Miami has a top urologist Dr. Solloway
urology.med.miami.edu/x14.xml?id=P1173
pat

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