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8 years 7 months ago - 8 years 7 months ago #39066 by horace
Hi Dieseldoc,

Thanks for your comments.

I don't doubt the integrity and commitment of most medical professionals, the problem is the way they are trained to think - the other problem is the (inherent) uncertainty in what they do - current medical technology is far from perfect.

I can understand why you call certain therapies "snake oil remedies" - we have been conditioned to think the same way as doctors.

I am under the care of a team of urologists (being a public patient in our system) and have sought advice from an independent urologist and also an oncologist and several other physicians, so I have been well advised by conventional medical practioners.

Lately, I have been reading professional medical papers on the management of T1 G3 BC - dealing essentially with the question "do you go with RC or periodic (virtually a given) TURBT/BCG"?

They seem to say in the end that the life expectancy of either is about the same, statistically on average 10 - 15 years (depending on which study). Of course, that is the average - some will fair better, others worse.

My friend who takes the kernels has survived 5 years without out a symptom - who knows what's really going on? However, he hasn't had to deal with the post operative complications and morbidities of RC and the ongoing trauma of periodic TURBT/BCG treatments.

In the end, each person has to make his own judgements about the path he treads.

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8 years 7 months ago #39065 by dieseldoc
Horace. I'm confused, is it that doctors don't know what they are doing, and this "old chap" does? I really don't think this guy cares whether you live or die. I think you need to go get professional help. seek someone that has allot of experience with bladder cancer, and don't really on these snake oil remedies!!!

T1,NO,MO battling bladder cancer since 2005

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8 years 7 months ago - 8 years 7 months ago #39064 by horace

If you really want to take on your health on you might want to think about greatly reducing your animal protein and sugar intake. Also alkalize your body (protein reduction helps this). Cancer feeds on sugar. Animal protein consumes pancreatic enzymes which also destroy the protective protein shell around cancer cells. Cancer also survives in an acid environment - that's why you need to alkalyze your body. You do this by eating plenty of (generally) green vegetables and some fruits. Beverages like green tea help also. There are supplements which reputedly kill cancer cells.

I went to a second urologist for an opinion on my condition. He told me it is sometimes difficult to detect the efficacy of a BCG treatment - it can take months to show up (apparently the tuberculosis baccillus is notoriously slow acting). He told me he had a patient who undertook BCG and did not appear to respond. As a conservative (i.e. risk minimization) measure he recommended RC. Unfortunately he found that the patient's bladder was cancer free (I presume no muscle invasion) and need not have removed it.

No-one and nothing is perfect.

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8 years 7 months ago - 8 years 7 months ago #39063 by Alan

I too grasped at what I could do to enhance my body. I still firmly believe in medical powers that are PROVEN to help at the same time I have also tried to augment my body's system. Such as eating just a little better with everything in MODERATION. Added about 4-5 ounces of pomegrante juice at night knowing it is super high in antioxidants (like most dark berries or fruits) and being a liquid it should go pretty quickly through on to my kidneys. I have totally cut out carbonated soft drinks. We know what it does to dirty pennies when dunked-what does it do to our insides? Somewhere, I believe Dr. Lamm, that he had noticed a distinct decrease in reoccurences in his patients that stopped drinking these sodas. Who knows? While I sound like a broken record along with Mike, the BCG treatment is a proven track record of many successes.

Regarding a second TURB. It also has been proven that BLC is very often understaged. I remember thinking my URO goofed after his first when the G3 (high grade) was diagnosed. With that he said he does a second everytime. That is standard protocol and am glad he did.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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8 years 7 months ago #39062 by horace
Thanks for taking the time Mike.

Your friend didn't even have a TURBT?

Re kernel toxicity - I was taking 40 - 60 per day for a couple of weeks - by some accounts I should be dead. :) - and at high levels like this and when you take a few in a short period of time, there is nausea etc.

So you are correct - each person has to modulate his intake to the way his body responds.

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8 years 7 months ago - 8 years 7 months ago #39054 by mmc

Sorry but I don't recall. I think it was a few years. The problem is that he died so he couldn't renew his internet domain. It's been a couple/few years since I read it and I can't find it again. I searched and searched because I wanted to get the info to you to let you read it for yourself.

He did not have any other treatment.

My point was, take the seeds if you want (but be careful to not take doses which could be toxic) but don't do that to the exclusion of conventional medicine.

Go find a couple hundred other people who were cured by taking kernels. I seem to be doing a poor job of communicating that one person is not enough to prove or disprove anything. It could very well be that wouldn't have had a recurrence anyway. It could also be that the kernels helped prevent the recurrence. Who knows? It's just important to use all the tools available to you and conventional medicine has a very good success rate (thousands and thousands--not just one guy) for treating early stage bladder cancer.


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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