Update on me

12 years 10 months ago #37781 by motomike
Replied by motomike on topic Update on me
The path report can be much more telling. You know that we are here with you and for you.

I'm 70, retired heat/air contractor. After 4 months of keymo ileal conduit (IC) surgery removed bladder & prostate May 2010

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12 years 10 months ago #37777 by mmc
Replied by mmc on topic Update on me
Alanlee,

Unfortunately, bladder cancer has a very high recurrence rate. Was the doctor sure that it is a recurrence, or was it possibly some that was missed during the first TURBT? It may well be time to get to a 2nd opinion doctor at a top bladder cancer center.

Could be that mitomycin would help or BCG. BCG works best on CIS, which is high grade, but it considered helpful with low grade as well. With Ta Low Grade, as you said you have, that "watchful waiting" is often the plan. One does have to question how many recurrences are ok before moving to BCG or Mitomycin treatment plan though.

I'd really suggest getting to a bladder cancer specialist at this point for a 2nd opinion on the treatment plan.

Hope the pathology comes back the same on this one as the last time. Ta/G1 is about the best you can have if you are going to have bladder cancer. However, low grade can also become invasive so regular monitoring (and regular review of the treatment plan) are required forever.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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12 years 10 months ago #37776 by alanlee
Replied by alanlee on topic Update on me
Today is May 19th and I just had my first follow up cysto.....the doc said the cancer was back again, not as much as the first time, but i need to go back to the hospital for the laser thing again.....Im just feeling a little down and sorry for myself, but i do know that its not fatal, and I was told it can reoccur.....I begged the doc not to leave me in with a catheter this time, and since it is not as bad as last time he said "ok".....LOL.....I was in sales so I "sold" him on it maybe.

Anyway this is where I come to let it out, and once again thanks for reading this.

Surgery is scheduled for sometime in the next 2 weeks.

alanlee

2/2011: diagnosed with non invasive Type1 stage1...and had turbt in march....first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser....still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another...

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13 years 1 month ago #36722 by alanlee
Replied by alanlee on topic Update on me
Thanks to all once again......May is my next Cysto.....I will let you guys know, while i sit and wait, and ruminate.

2/2011: diagnosed with non invasive Type1 stage1...and had turbt in march....first follow up 5/19/11, had laser again as it re-occurred.
10/12/2011 TURPT with more bladder laser....still non invasive..
11/17/14 diag. with CIS non invasive, beginning BCG 11/26/14
2/2015 BCG did not work, had another...

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13 years 1 month ago #36712 by GKLINE
Replied by GKLINE on topic Update on me
Alan, Always glad to hear the good news! Enjoy! :laugh:

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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13 years 1 month ago #36575 by jimswife
Replied by jimswife on topic Update on me
Alan great news for you! Keep on trucking!!1

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