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37 is too young. Look at the waiting rooms!!!!

13 years 2 months ago #3078 by Rosemary
Rooster,

I am not a doctor and am not trying to diagnose, but you might want to google interstitial cystitis and see what you think.

This is the only bladder condition that even sounds like a rash, and according to everything that I have read so far, it is very hard to diagnose, and goes misdiagnosed sometimes.

Unlike a urinary tract infection, interstitial cystitis cannot be diagnosed with a simple urinalysis or urine culture. Rather, it’s a diagnosis of exclusion, which means that a clinician — usually a urologist or gynecologist — will first take a thorough history and then perform tests designed to rule out other conditions. These include infection, bladder stones, bladder cancer, kidney disease, multiple sclerosis, endometriosis, and sexually transmitted diseases.

The next step is a procedure called cystoscopy with hydrodistension, which is performed under general anesthesia. The clinician inserts a fiber-optic tube through the urethra and into the bladder. The bladder is then filled beyond its usual capacity with liquid or gas to stretch it and allow a closer view of the bladder lining.

The most common sign of interstitial cystitis is red pinpoint spots of blood (glomerulations) covering much of the bladder wall surface (see below). Sometimes there are scars or lesions called Hunner’s ulcers, accompanied by low bladder capacity due to tissue stiffening (fibros...



Here is the site with pictures...hope this helps. It is all that I can come up with considering the information that the doctor gave. Once again, Good luck.

http://www.health.harvard.edu/newsweek/Diagnosing_and_treating_interstitial_cystitis.htm



This is a mystery.
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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13 years 2 months ago #3077 by Rosemary
Okay,

I googled rash and bladder and can't get a hit. :-X

I even googled psoriasis and bladder and didn't get a hit.

My only question is this...

IS THE DOCTOR PLANNING TO BIOPSY THE SITE? IF HE DOESN'T BIOPSY THE SITE, THEN I THINK HE NEEDS TO PROVIDE YOU WITH THE PROPER NAME FOR WHAT IS IN YOUR BLADDER!

What this brings to my mind is when my sister saw the photos of my bladder cancer, she said, "That looks like psoriasis." (We both have psoriasis) There were obvious tumors also.

The doc just gave her a glare. >:(

Anyway, I'm not saying that you have bladder cancer. But, I think you deserve a name for whatever it is that you have. If it doesn't have a name, I think I would insist on a biopsy or a 2nd opinion.

Blood in the urine has an organic cause. Saying you have a rash just doesn't cut it. Not to me anyway.

Good luck and please keep us posted.
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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13 years 2 months ago #3075 by rooster69
I-am-supposed-to-return-to-him-on-the-16th-of-january-so-he-can-check-my-urine-again,--and-check-on-the-"rash".--I-have-never-heard-anyone-say-"I-have-a-rash-in-my-bladder"
If-I-still-have-the-rash-and-blood-in-my-urine-I-will-return-to-every-three-months-to-check-for-blood-and-on-the-rash.
I-wasn't-able-to-view-the-procedure-so-I-don't-know-what-it-looked-like-(the-rash),but-he-said-it-was-at-the-base-of-my-bladder.--Iwasn't-able-to-get-out-of-the-urologist-what-would-cause-the-rash,or-what-it-was.
I-don't-think-I-want-to-go-back--I-think-that-if-something-were-really-wrong-thect-scan-would-have-picked-up-on-it.
Any-ideas-on-this?
Would-I-offend-the-dr-if-I-got-a-second-opinion,-or-do-I-need-one???
I-can't-even-find-anything-on-the-net-regarding-a-rash-in-the-bladder.
Thank-you-for-all-your-help-even-just-listening-I-would-feel-retarded-telling-my-friends-I-have-a-rash-in-my-bladder
:-[

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13 years 2 months ago #3073 by Rosemary
Rooster,

I am glad to hear that there were no tumors.

I have not heard of a rash before. :-?

What is the next move?

Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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13 years 2 months ago #3072 by rooster69
My-computer-key-board-won"t
-space-so-I-have-to-use-this-key--- ;D-thank-you-all-to-answered-I-had-the-cystoscopy-yesterday-and-the-urologist-checked-my-urine-again.--I-had-three-times-more-blood-in--urine-than-two-weeks-ago.--The-urologist-said-he-found-no-tumors-but-saw-a-"rash"-in-my-bladder.--What-this-is-I-don't-know.--Should-I-get-second-opinion-or-are-rashes-in-the-bladder-common.--I-was-thankful-he-found-no-tumors-and-pray-for-all-of-you.

Thank-you-all-again

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13 years 2 months ago #3070 by Rosemary
Simon,

I personally have not yet heard of laser surgery for BC. I am fairly new here (diagnosed with BC Jan 06) and this idea is a first for me.

Perhaps someone else has more information about laser.

I'm just wondering how the tumour can be staged and graded when it is zapped? :-?

If I were you, I would google around for information on solitary/single tumor as opposed to multiple tumors in the bladder. See what you find. It MIGHT make you feel a little better.

My doctor thought I was young for BC (I'm 54). ..... Try being female too.

I hope you get back with us, and maybe someone here can jump in with more info on laser surgery for BC.

Good luck,
Ro

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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