Pre diagnosis- recurring UTI’s need advice.

14 years 2 months ago #29917 by Christine Springfield
Replied by Christine Springfield on topic Pre diagnosis- recurring UTI’s need advice.
I'd like to 3rd the emphasis for a more thorough investigation! I went in with UTI symptoms and we tried to treat it with antibiotics for about a month before they found the cancer via cystoscope. Mine was BIG though and very obvious through the scope. The scope is just a little camera that they stick up your urethra, bend around and visually look at the bladder wall. There are a lot of reasons and ways that cancer can be missed just looking at a little eyepiece stuck down there. PLEASE go get some additional tests done... your symptoms could be due to a number of different things, including things that are not cancer.

T3/G3 - Squamous Cell/Transitional Cell Carcinomas
RC w/Studer Pouch 4/25/07

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14 years 3 months ago #29715 by sara.anne
Replied by sara.anne on topic Pre diagnosis- recurring UTI’s need advice.
Laurie, I would second Cynthia's recommendation that you find
a urologist who specializes in bladder cancer. It is very possible that you do NOT have this, but symptoms like UTI's are one way it does manifest itself in women. My only symptom was recurrent UTI's (which they really weren't) and it was only after my urologist did a transurethral biopsy (TURB) under anesthesia that we got a diagnosis.

Good luck to you

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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14 years 3 months ago #29704 by Cynthia
Replied by Cynthia on topic Pre diagnosis- recurring UTI’s need advice.
Laurie,

A cystoscopy can find tumors or irregular spots in the bladder that need further testing to know what they are. Not all cancers of the bladder can be seen well visually using the technology available in the office and are found during pathological review of samples. There is something called urine cytology where a pathologist looks at the cells in the urine to look for irregular cells.

If you let us know where you are we can give you the name of someone close to you who specializes in bladder cancer. At this point you really need to have someone take you serious. Woman do not get bladder cancer as often as men but it tends to be found at a later stage due to delayed diagnosis. There are many things that could cause the symptoms you are experiencing and one of them is bladder cancer.

We are here for you, not knowing what is going on can be worse than knowing.

Please let us know what you find out.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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14 years 3 months ago #29702 by Cynthia
I am posting this for a new user LaurieN

LaurieN : Hello. I am a 50 yr. old woman that has had recurring UTI's for over a yr. now. My most recent was this wk., with bleeding. I have seen an Urologist (2 mos. ago) and had a cytoscope. Dr. said everything seems normal. Wondering why I keep getting UTI's & always with bleeding. Does the cytoscope automatically detect any cancer or is this something that I should request from Dr. to be done?

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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