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Dr. Lamm e-consult?

13 years 1 week ago #3274 by Patricia
Hmmm.... the urologist referrals are given probably based on treatments for men....lots of money in prostrate stuff....i mean look who's sitting in the many women do you see? I'm in an area and i might add a major city where they don't even know what an Indiana Pouch is ..... i'm with the one uro group that does know tho they have never done the procedure. There are 3....yes 3...stoma nurses in this city and they don't know what it is either. When i first came home from my surgery in a center 4 hrs away i needed follow up care but they just looked at my J-tubes and said i don't know what the hell you've got? When i did get a complication none of the hospitals here would admit me because they knew nothing about it and lucky for me i made it back to the surgery center 4 hrs away before it killed me. I remember when i was interviewing top surgeons who do this surgery they all seemed to know that i was in an area with the worst uro's in the country.....interesting huh? Mark Twain was right about this city!

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13 years 1 week ago #3269 by Rosemary

Wow! :o

Actually, I take your point quite well.  You may be on to something, too

But, in my case, there are options and there are options.

The Urology Clinic here is the only show in town.  My present Uro has been represented as the most warm and cuddly of the group.  There is another Dr. at this clinic who discounted blood in my urine about 8 years ago.  I do not want to see him.

I could go about 45 miles away to a University group which might be better.  But, that would be a great taxation to my sick time at work and a burden on my family for future hospitalizations. :-/


Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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13 years 1 week ago #3267 by Rosie
Rosemary, I have found people who highly recommend a doctor often times have not been treated by that doctor themselves or have not been treated for the same condition. My first urologist in Texas was highly recommended to me by a surgical nurse that worked at his hospital in Wichita Falls. After 2 visits to him I learned that he was inept and switched to a urology center at UT Southwestern Medical Center in Dallas. I sent a letter to Clinics of north Texas complaining about the urologist and his lack of proper procedure, protocol etc. I received a letter in return dropping me from any further service from any physician at Clinics of North Texas. That group included my primary care physician and my gynocologist. A few years later the same urologist was in the news for suddenly deciding to cut off a man's penis while doing bladder cancer surgery. Of course the man had not been advised that was a possibility during the surgery. As if that wasn't bad enough the pathology report showed the penis was not cancerous. You may have seen the man on the Oprah Winfrey show about a year or so ago. Moral of this story GO BY YOU OWN INSTINCTS.

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13 years 1 week ago #3265 by Rosemary
The Dr who diagnosed me moved away in August.  We had a wonderful rapport.  He actually called me as he was leaving town and told me that if I ever needed anything to give him a call at his new practice across State.

My new Urologist has been recommended to me by many people in the Medical profession, including my gynocologist of 10 years.  Lots of votes of confidence.

So far, I have not enjoyed the same easy, two-way relationship as with my previous Doctor.  The fact that I have had to PROVE to him that my arthritis is BCG related has not stoked my confidence in him. (This reaction IS rare, less than 1%).  The fact that I have trouble getting a phone call to him doesn't help at all.

Also, when I took the E Mail from Dr. Lamm to my new Doctor, the doctor said,

"I think I worked with him. Was he ever in Virginia?"

I said, "I don't know. He is in Phoenix now. His name is Don Lamm".

He said, "Yes, I worked with him for a year in Virginia".

It kind of amazes me that my Doctor obviously is not keeping up with the Lamm research.

This kind of boggles my mind. :o

But, I have made a CONSCIOUS decision that I am NOT going to alienate this Doctor with any complaints.  He has been too highly recommended, and I may really need him someday.

It helps to talk about this...


Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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13 years 1 week ago #3257 by Patricia
To Bob out there.....well maybe he answers your calls but i think you better do some homework. Wait for the next tumor to appear?.....??? This is a very sneaky cancer...if he didn't get the margins of that tumor you could have some new offshoots very quickly. Was it invasive? What stage was it? If you can afford a major cancer center ...go. They can only guess what causes this cancer so for prevention its anybodys guess. Pat

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13 years 1 week ago #3256 by Bob_P
I guess there are some great doctors out there and some not-so-great.  My urologist seems to be pretty good (so far).  He let me look at the tumor when he first saw it by holding the cystoscope up to my eye (It was quite a shocker).
He says I can call him anytime for questions. I took him up on that shortly after he did my TURB by calling him at 9:30 PM on Sat. night since I was so uncomfortable. He wasn't even the urologist on call! He was very nice and said I could call him anytime that weekend also.  AND I belong to an HMO!
My only concern is, like a lot of doctors, he is cure oriented and not prevention oriented. His feeling is wait for the next tumor to appear and he'll zap that out also. When I ask him about ways to prevent it from appearing, he is kind of at a loss. When I mentioned foods high in anti-oxidants, he said: "That's good, keep eating those".
Bob P

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