I was thinking about the members of this group the other day and wondered about their history with bladder cancer. As a newly diagnosed patient, my first concern was how long do I have? After researching I was somewhat calmed knowing that there are so many options for treatment.
Just wondering how long some of you have been dealing with this since not everyone shows that in their posting (not even sure how to put that on mine).
Don't know if this is too personal of a question. If it is...just ignore this posting.
hello vgau.its a good question,not sure there would be the room to show on my postings,
4/4/06 dx@44 2.5cm tumour/turbt/chemo(mitomycine)G1pta,in hospital for a week due to a perforated bladder,
19/7/06 4 tumours/turbt/chemo/
22/3/07 turbt/clear,constantly ill through out this period due to many UTI,s
17/8/07 flex/cysto recure,s
24/10/07 6 tumours/turbt/chemo/mostly all over 1cm
22/1/08 chemo (mitomycine)x6 weeks
18/3/08 4 tumours plus 2 flat areas sus CIS turbt/chemo,also a major complication due to the clumsey rigid cysto,the details of which i shall omit
26/3/08 pathology shows sus CIS to be calcified calcium
deposits lodged in previous tumour wounds,but also shows an upgrade to G2,
asked to be put on the hexvix treatment trial ...denied
17/7/08 2 tumours turbt/chemo
asked again to be put on hexvix treatment trial...denied
28/9/08 after advice i contacted the consultant in charge of this new hexvix treatment and decided to go for what is sometimes known as an adverse referal(uk)and was accepted
22/1/09 7 tumours some over 1 cm turbt/chemo
4/4/09 2 tumours turbt/chemo both very small papillary type
12/8/09 turb.......clear,observations were the bladder has the look of a normal healthy one,halabloodyhula
at last i can dream again
i realize this is a long post,but that has been my journey so far,it may not be yours,i have read many posts on here from warriors who are dx and have treatment,and then go into recovery,and a happy life,and i would wish the same for you also,
Just had cystoscope and biopsy done on Oct. 30, 2009.
Report shows #1 right posterior wall grade 3 papillary transitional cell carcinoma no evidence of invasion seen focal squamous metaplasia of adjacent urothelium.#2 right posterior dome grade 3 papillary tcc. with focal adjacent cis. no evidence of invasion see.
#3 right dome grade 3 tcc, with focal urothelial cis no evidence of invasion seen
all 3 state no muscularis propria is present for evaluation.
Waiting for my insure. pre-cert to go for bone scan. Then appt on Jan 8 with urologist.
Been trying to do all the research I can so I have a clue before the Jan 8 appt. Sometimes, all the info seems a little overwhelming. Just glad I found this site. Been reading all the past posts. A lot of useful info from others who have been through this.
Prayers are with all of you.
May 2006 was the start for me - one small low grade, non-invasive papillary tumor; recurrence two years later (same type, but 2 this time, and even tinier). Have been on BCG since the recurrence, and still all clear; cystoscopies still every 3 months, next scheduled for January. My dad had bladder cancer back in the mid-1970s, and lived until 1989 with only one minor recurrence a few years after the first tumor. (He died at age 84 of lung cancer, unrelated to the bladder cancer, though both cancers were no doubt related to the fact that he had been a smoker.) I never smoked, but was exposed to second-hand smoke growing up (both parents) and in my younger adult years (college, etc.). Evidence is still inconclusive on second-hand smoke and bladder cancer risk, however.
Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.