I've got my neo 20 months ago. Tumor was large and aggressive and had to do a neo but when they got in they also found it was non invasive and every thing else such as lymph nodes and ct scan and bone scan were clear.
My prognosis is about 95%. I get scans every 6 months now.
I'don't think there is anything too personal on this site
I first went to a urologist with UTI symptoms in November, 2007. When I didn't have any infection, he did a cystoscopy and saw an "ulcer" in Dec. In January, 2008, I had my first TURB and papillary was found along with "areas of inflammation." He then did a second TURB in February, 2008, which also found CIS. Have been doing BCG since then. So,
almost two years.
How time flies when you are having fun!
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
I was thinking about the members of this group the other day and wondered about their history with bladder cancer. As a newly diagnosed patient, my first concern was how long do I have? After researching I was somewhat calmed knowing that there are so many options for treatment.
Just wondering how long some of you have been dealing with this since not everyone shows that in their posting (not even sure how to put that on mine).
Don't know if this is too personal of a question. If it is...just ignore this posting.