husband diagnosed june 26 2009

14 years 7 months ago #27228 by Joey
Replied by Joey on topic husband diagnosed june 26 2009
After my initial Turb 19 months ago for the same dx I had a stent placed in due to the location. I also had constipation with blood in the stool. I was concerned enough that I went for colonoscopy which was negative. The constipation could have been caused by the antibiotics. After about two weeks everything returned to normal.

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14 years 7 months ago #27179 by wsilberstein
Replied by wsilberstein on topic husband diagnosed june 26 2009
Kidney stones and I supposes stents (if they cause irriation) in the distal ureter (the far end where it attaches to the bladder) can cause intestinal symptoms as well as urinary symptoms. When I've had stones I've found that more annoying than the flank pain.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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14 years 7 months ago #27172 by Julie
Replied by Julie on topic husband diagnosed june 26 2009
Sherre, The stent in the ureter irritates the bladder and may cause some blood in the urine. When was the tumor removed? It is fairly common for the bladder to shed clots for some time after the TURBT.
If the pain in the back is significant enough to cause your husband to stay home from work he should let the urologist know. If your husband is on pain medications that can cause him to be stuffed up. He may want to ask the Dr. about using a gentle laxative. I hope he is feeling better soon.

Julie

Volunteer Coordinator
ABLSC

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14 years 7 months ago - 14 years 7 months ago #27167 by Patricia
Replied by Patricia on topic husband diagnosed june 26 2009
Well thats a hopeful pathology report. Here's a page from the National Cancer Institute on staging and grading which should be helpful. Current thinking amongst top cancer centers is to have a second TURB within 6 weeks of the first TURB. They will frequently re-seed if all margins are not gotten.
Your insurance should be in full effect by that point. I will tell you in my case it saved my life and i was much further progressed than your husband.
I wonder if he's not experiencing another kidney stone? Also did he have a CT scan and blood work. Thats pretty important also.
www.cancer.gov/cancertopics/pdq/treatment/bladder/HealthProfessional/page6
I wish you the best and let us know what the uro has to say.
Pat

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14 years 7 months ago #27166 by ibpoew
Replied by ibpoew on topic husband diagnosed june 26 2009
Thank you very much for posting and we will get a second as soon as we have coverage again. Here is the pathology report: Bladder, transurethral resection: Papillary urothelial cell carcinoma, low grade, noninvasive (pta). Muscularis propria is present with out invasion. 5x3x0.4 cm tumor. At the bottom of the report the Dr wrote Lg Ta TCCa Bladder. We are starting the prune juice tonight he is saying he feels stopped up and he has called off work the rest of the week. This man has never called into to work that I can remember. Anyone out there now anything about this monster?

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14 years 7 months ago #27160 by Patricia
Replied by Patricia on topic husband diagnosed june 26 2009
I now see you are in Oklahoma...here's a page of 4 uro's at the cancer hospital at the U of Oklahoma
www.ouphysicians.com/body.cfm?xyzpdqabc=0&id=950&action=list
just click on each one to read their bio's.
If its possible to get a consult out of state with MD Anderson...they are one of thetops in bladder cancer.
www.mdanderson.org/patient-and-cancer-information/care-centers-and-clinics/care-centers/genitourinary/doctors-staff/index.html
Drs. Dinney, Grossman, Kamat some of the few who are specialists.
Pat

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