UK Hubby, 45, G2 with CIS - we think! Scared too!

Rab,

It is a tough way to proceed when your spouse doesn't want to know much and just accepts what is recommended by medical. I had that situation with my husband a few years ago. I did not let up on giving him information, alternatives, possibilities even when he said he did not want to hear it. I kept it up. Because of my pushing and inquiry he finally probed further and cancelled the invasive surgery that was scheduled and went with a laparoscopic procedure. He thanks me to this day for being persistent. Keep pushing your husband to get the written pathology report, the operating room report, the doctors report. Here in the U.S. we can go to our hospital and receive a copy of the operating room report and all tests performed in conjunction with it. Keep after that husband to become very informed as we are all in charge of our own medical treatment and can choose best when we are informed. The family is involved whenever there is a medical challenge and all need to be considered so they can work as a team. Your fear imagination can run wild if you don't have concrete facts.

Rabbit, I don't know a whole lot of info... but let me assure you, this is the place to be. Hold on until people start replying and you will find your answers and a lot of comfort and support. I'll be thinking of you and please don't be scared. We'll help as much as we can. take care and welcome. elaine the rugrat.

Hi. Been reading all your posts for past 3 weeks since finding out Steve has BC. Unlike most of you on here we have not been furnished with a 'path report' and have been told by the Clinical Urological Nurse that his BC was G2 and there was another flat area 'picked up'. No 'T' type was mentioned. So far, I have been unable to talk to her as she will only talk to Steve and he has just relayed what he was told to me. Because of this I am assuming that the flat area is CIS. His consultant spoke to him the day after his TURB and said he was '70% confident the 'tumours' were 'non-aggressive'. This instilled us with great hopes. Now, we have been told they were G2 and means he was wrong, doesn't it? He was told by the Nurse that they were at the bottom end of G2 - whatever that means! Anyway, he now has to have the weekly BCG for 6 weeks. He had the chemo wash immediately after the op too.

I am rather scared as after reading everything there is know about BC, that CIS is highly aggressive and 'progresses'. Can BCG get rid of it? I know it is good for the superficial tumours but what about CIS? Wouldn't it be better that they remove his bladder? I have not told Steve any of this as he isn't the type of guy who likes to know everything. He accepts what the medical profession says and reads nothing about it on the net. I, on the other hand, have read too much probably and frightened myself to death over it. The contributors to this site seem very well-adjusted, lovely people, who need to give me some positive feedback!!!

Oh, he has to have a CT urogram on 15th December. That has worried me too. He was told all BC patients receive one..but I am going through the 'do they know something we don't'.

He starts BCG next week. He is away in Spain this week, leaving me to chat to you lot. Plus we have a 2 year old daughter who occupies a lot of my time, which is good, otherwise I would be on here all day!

Would love to hear from you all.

Rab