New user with T1 G/3

Vince,

I am T1 G3 also. My Uro kept sending me back until there was enough muscle tissue for a good
sampling. This is of utmost importance!!

My recommendation based on my own experience is to go get a second opinion at a teaching hospital.
Ask a top Urological Surgeon to do the biopsy and make sure there is plenty of muscle tissue.
My second opinion doctor at UNC Hospital in Chapel Hill was part of a multidisciplinary team which
means that after my biopsy and CT scan, a whole bunch of different head doctors from various departments
(Oncology, Radiology, etc) sat around a table and discussed my case to form a consensus on the safest direction to take.

I urge you to get a second biopsy with a deep muscle sample. The fact that you are having recurrances while on BCG is not such a good thing with your Stage and Grade.

Your Bud,
Rosemary

Vince,

All I can say is get a second opinion. Your life is nothing to full around with. While they briefly thought of giving me a partial cyctectomy, until they confirmed there was muscle involvement, they decided a radical cyctectomy was my best chance at survival. It is very important to have a good doctor and a good pathologist.

Wishing you the best

Webs

Vince...i'm concerned that no muscle tissue was present for evaluation at your TURB. I think there is quite a controversy on partial cystectomy. I remember my local uro wanting to do one on me and when i went for my second opinion to MSK in New York my surgeon there just rolled his eyes ........
www.sciencedirect.com/science?_ob=ArticleURL&_udi=B7XMT-4HMVSN6-3M&_user=10&_rdoc=1&_fmt=&_orig=search&_sort=d&view=c&_version=1&_urlVersion=0&_userid=10&md5=9079fbf7bb6eec6a6e2dddea63dc0fb7
I would maybe seek a second opinion and a second TURB with muscle tissue present for pathology.
And i don't know of one person who has to wear a catheter after receiving a neobladder or Indiana Pouch....they may have to catherize..especially the females......but nothing indwelling.
Pat