Hi JJ2,
My father had his 1st Turbt last week, his cystoscopy was about 4 weeks ago, I obviously can’t speak for him totally but thought I could give you an idea of what I saw, my dad went to doc with visible blood in his urine (there was a lot of blood, never mentioned clots??) he had no pain either! He was given 2 weeks of antibiotics to see if it was an infection, these didn’t work so he was scheduled for a cystoscopy. The cystoscopy wasn’t too bad, think it was mostly the fact that he thought, the same as you, no tube should be going up that direction ha ha !! The procedure was more uncomfortable than anything else, my dad said it was a little painful but didn’t last long, he’s not a great patient though, defo looking for more sympathy from us
He was a little uncomfortable for a few days, more stinging than painful and then he was back to normal!
As for information given to my dad, as the doc was doing the cystoscopy, my dad was allowed to watch the screen, he was told (and shown) a “growth”, he told him it was quiet big but said he couldn’t tell anymore until biopsy results, he didn’t give him any indication of stage/grade etc, he scheduled him in for a TURB (4 weeks later – 6th May) He was told the IVP was clear at the time by the doc, he had his CT scan last Wednesday (post Turb) and was given good news that the CT was clear on Friday! I think we can deal with most other things once its just in bladder! So now we’re waiting on biopsy results, they are out this week! So keeping fingers crossed at the moment, as I’ve said before, the waiting and the unknown is the worst part!!
Stay positive, I think that is the most important thing (as hard as it seems sometimes) and that is what we’re trying to do!!
I’ll be thinking of you…