One Question About Pain

15 years 10 months ago #16474 by tahoemom
Replied by tahoemom on topic One Question About Pain
:-* Thanks marie .. I know what to expect if it goes like he says it will. But since I didn't ask about pain issues, thought I'd better ask :)

Hugsss

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15 years 10 months ago #16449 by marie
Replied by marie on topic One Question About Pain
Hi tahoemom,
I had 3 TURBTs last year and two days after the first one I had a toilet full of blood...my doc had told me that some bleeding was normal, but I did not expect this amount and went to emergency, only to be told that it was ok - can happen after a TURBT. Other than that, I did not have much in the way of discomfort after the TURBTs and was up and about the next day.
Good luck,
Marie

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15 years 10 months ago #16447 by Melodie
Replied by Melodie on topic One Question About Pain
tahoemom,

I like Pat, never had any physcial pain as a result of my TURB....not immediately following the surgery or even later. I went come with a cath and had to keep it for five days before it was removed...that was a bit uncomfortable, just the idea of a bag of pee connected to my ankle most of the day was annoying...I drink lots of liquids so I was having to quite often empty the bag. Also, the hospital forgot to give me an over night bag and so the first night home I was unable to sleep for fear that the ankle bag wouldn't hold my flow...so I was up during the night. Be sure they give you an over night bag so you don't have that worry. Melodie

Melodie, Indy Pouch, U.W.Medical Center, Seattle, Dr. Paul H. Lange & Jonathan L. Wright

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15 years 10 months ago #16420 by timb
Replied by timb on topic One Question About Pain
Ive had pain on urination a month after a TURBT. Even longer occasionally. If you're concerned then do seek medical advice but I don't think your timescale sounds outrageous in my experience. The recovery rate from this invasive procedure is hugely variable. Once I was told, after having a bladder neck tumour removed, to brace myself as this was a particualrly "spicy" location to have one removed from. I panic-bought gallons of cranberry juice and pain meds. It turned out to be a total damp squib and was the easiest TURBT I ever experienced. On another occasion I had a tiny tumour resected that the surgeon described as barely worth removing. The after effects of sharp urine infections, digging my toes into the concrete when I peed, seemed to last for months. Maybe it's the skill of the surgeon. Maybe they let the students "have a go" when you're under (they've got to start somewhere I guess!). In any case, in my broad experience, though you can safely say that a big tumour should give you more grief, it's still partly a lottery. Hang in there.

Tim

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15 years 10 months ago #16408 by tate
Replied by tate on topic One Question About Pain
Now I am a little concerned...I am glad that you all have had minimal pain. But I had my surgery on 4/17 and still have a little pain. I think I tolorate pain well, especially after years of endometriosis. The pain I feel is on the left side of my urether (sp?) that is constent. when I urinate the pain increases and sometimes it feels like a bladder infection. but my urine has been checked and I did not have one. After the surgery I was given peridium and something for spasms (which I can't take because it knocks me out for a couple of days) I called my Dr's nurse before I left town tuesday and she said to just watch the fever (that I am still having a little) and sometimes the pain can last longer. Granted the 1st weekend was the worst and the pain now it just like a metal rod poking me all the time.

Has anyone else had this?

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15 years 10 months ago #16375 by tahoemom
Replied by tahoemom on topic One Question About Pain
YA!! Good to hear ;D I will hold that thought!!

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