Just an anecdote, I don't know if my dr. at MD Anderson was speaking about
molecular markers or not. When I went over there, I wanted to find another treatment and I wanted to ask if I could wait until I finished my semester and became eligible to retire with medical benefits. I made it clear that it was a real question; I wanted him to decide. He seemed leery that day, but two days later said we could wait because the blood tests showed "cancer markers" indicating that my
cancer is not the most aggressive sort. You all know that it had spread, but may also recall that I may have had bladder cancer for quite a while before my delayed diagnosis. I wonder if the cancer markers he described were molecular markers. My
original pathology report has a lot of "factors" listed, but it has been a while since I reviewed it. When I first got it, I had no idea what those letters and numbers meant.
Can you clarify whether this related to molecular markers or not?
This is so welled put and exactly how I have approached my condition when I first found out and I live that way today. I want to know what is going on with me and I know I have myself in the hands of the best Dr's I could find. Joe
Many patients feel that by educating themselves (and perhaps even their doctor in the process), they can be assured that they will get the best odds in the long run. On the other hand, you have to take into consideration what this information would mean to you, will it change anything in your treatment? Could you rest easy knowing that you have an aggressive condition that needs careful monitoring? If you have put yourself in the hands of a competent team of doctors that you have confidence and trust in, this is also a valid approach. Each individual must find the path that helps him or her cope in the best way possible. For some, it’s knowing every angle no matter how scary. Others may be less comfortable with this information.