Pain after cystoscopy....

16 years 2 months ago #12095 by wsilberstein
Replied by wsilberstein on topic Pain after cystoscopy....
Each time I've had a cystoscopy I've had pain for several hours, and irritative symptoms that last 1-2 weeks. Unfortunately, just about any part of the lower urinary tract (bladder, prostate, urethra) can cause the same type of symptoms when irritated or inflamed, and while it might be a good idea to be on antibiotics prophylactically to prevent infection, depending on what's going on, it absolutely drives me nuts that my colleagues (I'm a pediatrician) think every urinary symptoms is a UTI. I had two episdes of pain and urinary symptoms this past year due to inflammation of a urethral stricture (something you should not have from having been instrumented only once). Of course, antibiotics didn't help, but it didn't stop my urologist form thinking it had to be a UTI. My symptoms took a month to resolve each time, but it also took at least a week from the start of symptoms to get to the point of having my stricture dilated.
As regards bleeding, I've always started passing clots about a week after any biopsies or surgical procedures and then taking 1-2 weeks to clear up.
If you're having bladder spasms (a frequent burning urge to urinate) a more potent antispasmodic than what is in Prosed might help such as Detrol. If you have irritation in the bladder, perhaps pyridium (which will turn your urine orange and looks really freaky when combined with the blue - I've been there :P ) might help. If the irritation is coming from your prostate or urethra, bladder meds do little good. If you're having awful pain and a pain reliever like ibuprofen (Advil or Motrin) doesn't help, consider asking your doctor for a narcotic pain reliever. BTW, ibuprofen is anti-inflammatory and might be beneficial if taken around the clock and not just when in pain, but it is irritating to the stomach and might require you to take an antacid or even Pepcid or Zantac.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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16 years 2 months ago #12094 by Imndnile
Replied by Imndnile on topic Pain after cystoscopy....
Yes I was out for the procedure, it was done as outpatient surgery at the doctors office. (Eastside urology associates in Kirkland, Wa.(Seattle),). I will get a copy of the patholgist report when I go in next week. I through out all the papers they they gave to my wife on discharge thinking they were garbage. I am torn going for second opinion as realy hate to exopose my self to anymore strangers.

Imndnile no more.
DX: TIS (CIS): Carcinoma in situ (non-invasive flat high-grade (G3) cancer)
12/13/07

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16 years 2 months ago #12079 by Patricia
Replied by Patricia on topic Pain after cystoscopy....
Well it sounds to me like you had a TURB in a hospital setting and you were put under anesthesia?? true.? As you have a pathology report they obviously resected the tumor. Depending on where you're located you can pick up that report from the hospital where you had the TURB done...just call and tell them you want it and let us know what it says. It may be time for a second opinion. Personally i never had any problems after two TURBS...no bleeding, no pain, no spasms...maybe the skill of the surgeon? Where are you located? Pat

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16 years 2 months ago #12077 by Maria
Replied by Maria on topic Pain after cystoscopy....
Sorry that you are in pain. It is normal to pee blue with Prosed/DS.
If you had a TURB surgery, it is common to experience spasms for a few weeks.
If you did have the surgery, were you given discharge information, including advise on when to call a doctor for certain post op symptoms?

If your pain is intolerable and causing you distress do you think it would be worth going to the ER today.

You could make an appointment with your uro or doctor, write down a list of questions. Tell your doctor what you have said here and ask for explanations. Keep a record and come back to the forum with anything you are unsure of.

People on this forum are extremely supportive and will want to help. I am sure others will reply to your concerns.
Hope you feel better soon.
Maria xxx

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16 years 2 months ago #12073 by Imndnile
Replied by Imndnile on topic Pain after cystoscopy....
I am a 47 year old male. Maybe I dont know the proper terms for everything as this is all new to me.
as for what all occured I am not sure I was told after the Cystoscopy that was something removed from my bladder near the prostate as well as several samples collected and sent to a patholigist? sorry do not have more details as I did know of this site and put my faith in the doctor. He is the one who gave the web address for this site. He said would give me a copy of the patholigst report but I forgot to get this from him the last time I saw him.

Imndnile no more.
DX: TIS (CIS): Carcinoma in situ (non-invasive flat high-grade (G3) cancer)
12/13/07

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16 years 2 months ago #12072 by Rosemary
Replied by Rosemary on topic Pain after cystoscopy....
Dear DNILE,

Are you male or female? It's hard to tell from your post.

Because you are having some blood at the end, I wouldn't guess that the pain is coming from spasms. I wonder if it could be a stricture, though I'm thinking this is uncommon.

You say you had a cystoscopy that included a biopsy? This would be highly unusual.
Are you sure that you did not have a TURB under anesthesia? This would make more sense.

Just guessing here, but I'm a little unclear about some of the issues.

Just to let you know that I care,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

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