what is wrong with me?

16 years 4 months ago #11012 by wsilberstein
Replied by wsilberstein on topic what is wrong with me?
Dear John,
First, a cystoscopy can rule out a tumor and help you move on, but it is not the only thing that a cystocopy can check for. The doctor can see if there's any inflammation in your bladder causing your symptoms. So go ahead with it and be done with it. The information we have is too limited for any of us to know if every test has been done. We don't know if the urologist has evaluated your stream, checked your bladder capacity, checked for post void residual.
What we do know, is that those of us here on the forum were ready to fight for our lives when we found out we had cancer, and yet you, at 19, are talking about giving up without even having such a diagnosis. I can't help wondering, whom do you turn to for support? I know you're not a kid, but are you talking to your parents, other family members, friends? It's great to turn to us for what support we can give, but it sounds to me like you need some more hands on support. Your stress, anxiety, and depression could be contributing big time to your symptoms.
Have you considered getting couseling? No matter what your final diagnosis is, it sounds like you could use some help in coping... with the future, and with the here and now.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

Please Log in or Create an account to join the conversation.

16 years 4 months ago #10996 by Rosemary
Replied by Rosemary on topic what is wrong with me?
John,

You are way too young to be this worried.

If you don't have blood in the urine, then I doubt that you have bladder cancer, but it sounds like you have got all the bases covered.

I'm curious if the doctors have measured your urine output?

Please hang in there.

Very kindest regards,
Rosemary

Rosemary
Age - 55
T1 G3 - Tumor free 2 yrs 3 months
Dx January 2006

Please Log in or Create an account to join the conversation.

16 years 4 months ago #10992 by maxmag
Replied by maxmag on topic what is wrong with me?
HELLO JOHN,
PLEASE DON'T LOSE YOUR "WILL TO LIVE".
KEEPING A STRONG WILL IS VERY IMPORTANT.
THIS MAY TURN OUT NOT TO BE A PROBLEM.
GET YOUR SCOPE..YOU NEED MORE INFORMATION.
WE'RE PULLING FOR YOU!
MAX

Max
Age 70
Ta G2
Dx March 2007

Please Log in or Create an account to join the conversation.

16 years 4 months ago #10966 by Zachary
Replied by Zachary on topic what is wrong with me?

Maybe. Maybe not. Probably not.

I'm more concerned with the fact that you sound so seriously depressed about the unknown. Get a cystoscopy. Soon. They only take a few minutes, and then either you'll be massively relieved or ready to make plans for your treatment.

You've certainly read the importance of getting checked by a doctor with experience, so I'm assuming you've been to good doctors. What are they telling you about your diagnosis?

Aside from the frequent urination and your concern about a tumor--and I know that's a big aside--what is the rest of your life like right now? I know that fear and apprehension are probably dominating your thoughts right now, but I really worry when someone says they've lost their will to live, especially since you haven't even been diagnosed yet. What Pat said is very important; you might be having a reaction to medications you're taking for something else. Please, please let us know the results of your cystoscopy--I'm keeping my fingers crossed for you.

Zach

"Standing on my Head"---my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein

Please Log in or Create an account to join the conversation.

16 years 4 months ago #10965 by Patricia
Replied by Patricia on topic what is wrong with me?
John...questions....any burning or pain when you urinate..is the urine cloudy? Have you been checked for infection...urinalysis?....Are you using any nasal decongestants? Are you on any tricyclic anti-depressants? Tricyclics are the following drugs:
Adapin (doxepin)
Anafranil (clomipramine)
Elavil (amitriptyline)
Endep (amitriptyline)
Ludiomil (maprotiline)
Norpramin (desipramine)
Pamelor (nortryptyline)
Pertofrane (desipramine)
Sinequan (doxepin)
Surmontil (trimipramine)
Tofranil (imipramine)
Vivactil (protriptyline)
Please don't lose the will to live....if you are on any one of these drugs it could be causing your problem.........tell me more......Pat

Please Log in or Create an account to join the conversation.

16 years 4 months ago #10962 by john_19
what is wrong with me? was created by john_19
I seriously dont know...ive lost all will to live...for the past 6 months ive been having the same symptoms...frequent urination w/reduced amount coming out..ive been to a nephrologist, urologist, and a gastroenterologist and they have nothing...ive had an ultrasound, blood work, and a colonoscopy and no results..the only option left is a cystoscopy..

im 19...do i have a tumor in my bladder?

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne