Hi Everyone, How do you all keep going with this never ending surgeries ,procedures , Treatments ?
I feel very low after last biopsy and Turbt since November 30 2016 .
Still in pain peeing every 10 minutes. Lack of energy and Christmas in a few days.
Scarred to have any more treatments as the BCG is awful . The first five were fine no side effects.
6th to 9th awful burning pain when urinating. i go through 3 depends each night.
My husband moved into guest room last year because I kept him up and he couldnt sleep with me disturbing him. . We are married five years.
Got bitten by a tick got Lyme as I was planting red flowers in the shapes of hearts all go, got a parasite Babesious that nearly sent me into coma instead of going on our honey moon I ended up in Hospital for a while getting blood transfusions.
I got restless legs from it and the medicine doctor put me on Mira pix ruined m life I got the over active side effects and couldn't stop making things , non stop couldn't sleep had to be making craft stuff ,knitting non stop even in the middle night ,knitting hundreds of stuff .
Then painful urination for which I was put on antibiotics for years when all the time I had bladder cancer.
I finally went to see an Urologist and told I had cancer which shocked me as I only ate raw veggies etc. No chemicals in shampoos soap, etc.
Thought my body was alkaline.
I am in constant pain . Very depressed. I am terrified I may a have to have my bladder out .
how do people survive this . My husband is great but I would be left in my room alone while I recover . I feel useless sometimes I cant go out or cook my husbands dinner feel like a bad wife. His first wife died of cancer and I feel sorry for him he has to go through this a second time.
Thanks for letting me vent .
Frances x
